Member
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Join Date: Jan 2015
Location: IL
Posts: 279
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Member
Join Date: Jan 2015
Location: IL
Posts: 279
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Quote:
Originally Posted by Littlepaw
This sounds like it was exhausting! It's a shame you have to go all over the place. I too am a bit concerned about how they are pushing you. It seemed like for me pushing too hard just caused me to backslide and I kept having to re-approach rehab a little more gently.
If it were me I would probably give it three tries before judging. You definitely have to get them trained! These people don't know you and aren't familiar with your injury. Nerve injury IS different than non-nerve injury and that needs to be taken into account. I personally think it's hooey that your foot is colder because it's trained to be cooler.  My Physical medicine doc said that even without CRPS my foot might be cooler the rest of my life just from the nerve injury. That's what happens sometimes.
I do think there is benefit to trying so long as you can find some balance with the program. Even with a nerve injury you can do some re-training and that may help you. I wouldn't tell them you're doing exercises that you aren't. They need to know exactly how you are responding so they can adjust your treatment plan. Take pictures of your foot if you need to.
I hope the amitriptyline helps this time. I got relief from nortriptyline in about two weeks and it helped me sleep better. The sleep aid alone helped me have less pain. Nortrip is a metabolite of amitrip and has less side effects if those are too bothersome.
Can you try a half size larger on your shoe? I had to do that for a long time...
I hope you get relief soon!
Sending hugs and healing love, 
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Thank you LP!
With the pain pyramid, if I go 1-2 pain levels up, that's okay. My problem is that I have been sitting between an 8-10 since I left the clinic. I've been a solid 6-8 since the beginning of December (with the exception of immediately when I wake up...pain increases the moment I get out of bed).
I have always been under the understanding that the nerve injury aspect requires a slightly different approach as well. When you can feel the temperature difference and an infrared thermometer reads several degree difference, I would say that is not my mind. I am troubled by all the implications...how it sounds like I should be able to "think" the pain away.
Even though I was on the amitriptyline before, I am willing to give it another go. My biggest concern is the weight gain. I know it sounds vain, but there's a medical reason...I am 5'1-1/2". I have already gained 40+ pounds with this and we are dealing with a weight bearing joint. If it was my arm, I would have less of an aversion to the weight gain side-effects. I'm hoping to avoid the weight gain with the amitrip this time around.
I am going to give it a few weeks. I'm struggling with getting the 'homework' done because of the pain/swelling. I feel it's better to let them know the positives and negatives of all of this or none of it will do any good. I just don't think they get how much pain I am in because I am pretty damn good at pushing through it. But I have barely been able to walk since getting home. Maybe I need to adjust my pain scale...lol
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
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