Have you tried a muscle relaxant like Flexeril?

With my profound PN I suffer terrible thigh cramps, so I always take Potassium at night, hoping to help.

I don't know of other forums, so I can't help you.

It sounds as if you have gotten the maximum professional help, Chris.

The contraction is so awful, isn't it, because it feels as if the muscle will pull completely away from your bones?

Are the crutches the result of a constant contraction and pain, or from damage done, or to prevent the contractions?

Hugs, ElaineD