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New Member
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Join Date: Jan 2016
Posts: 2
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New Member
Join Date: Jan 2016
Posts: 2
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Thank you to all for your thoughtful responses. 
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Originally Posted by -Spike-
The thing to remember about this disease is, the problem isn't seated in the "stubbed area." IF it is CRPS, it is a neurological disease of the brain, the spinal cord, and the nerves running through your body. Your foot, ankle, and leg are the symptom site (at least that is what I call them). Therefore in my opinion, get a good pain management doctor and hit it with everything you can.
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Thank you for explaining it this way, it kind of clicked. I DO keep thinking, if I can just fix my foot, it’ll all go away. But, sounds like it’s going to be a bit more involved than that…
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Originally Posted by Littlepaw
While what you describe does sound suspicious, even if it is CRPS there is much reason to hope. Dr. Michael Stanton-Hicks, a highly regarded CRPS specialist at Cleveland Clinic, says 80% of people improve over time. Yes, the disease can progress, but don't project the often doomsday information out there (or on here) onto your future.
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Thank you, I breathed a sigh of relief when I read this.
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Originally Posted by BioBased
Look up the Bowen Technique. I successfully used this to eliminate serious swelling. Basically using a specific washing soda crystal wrapped in a cotton cloth and tied around the swollen area overnight I was able to wick off excess fluid. It shocked me that it worked. I believe that prolonged swelling interferes with the lymph system, so by removing the excess fluid the lymph system can get back to doing its job.
I watched a YouTube video demonstrating the technique and purchased the crystals from Amazon.
Ice exacerbated my CRPS symptoms. Anti-inflammatories damaged my stomach. This crystal technique. non-invasive with no down side. Acupuncture helped minimally.
What helped me the most was the combination of LDN and pool therapy.
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I'll check this out!
Ugh, I so don’t want to go spend more money on doctors telling me they don’t know what’s wrong… Last month my small group insurance at work went up by about 40%, as we’d reached the deadline for getting an ACA compliant policy. So I’m paying about $90 more a month in premiums for lesser coverage, now every GP visit is $50 and specialist visit is $70. Plus my Cymbalta copay went up by $65 a month. And I’m already so overwhelmed with being a wife, mother to a 4 and 6 year old, working full-time. Anyway, I’ll quit my groaning, like ANYONE wants to deal with this...
So I’ve started looking up PM doctors through my insurance, but looks like I’ll be starting with my PCP because I have an HMO. I’m hoping to make an appt this week. Again, thanks to you all. I’ll keep you posted.
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