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Originally Posted by BeckyandDan
Hi, I am new here... don't know format, etc. but here goes... Have had unexplained face pain for years (10). Have seen several doctors, dentists and neurologists. Recently finally diagnosed atypical face pain.... great.... still pretty much unconclusive. Through the years have been on many, many meds with no releif just all the side effects. Am done with the meds but desperately want pain to be gone. Next week I see a team of doctors/specialist to see if I am a candidate for Motor Cortex Stimulation. This scares me. There's so much to go wrong. Has anyone had any experience with this for atypical face pain. If so, what do I need to know about it; what kind of questions should I be asking at my appointments; and finally, how do we determine "my" pain is really bad enough to go through this. As with everything, some days are much worse than others and on those bad days my answer is a definate yes... Please help me with questions and answers as time gets near I am getting more and more nervous, but ready for the pain to be history. Thanks.  |
Hi, I was diagnosed with the same thing but it's RSD. I used 4% lidocain nasal spray, 10% ketamine nasal spray and oral ketamine troches. The lido and k spray over time reduced and eventually ended pain. I has speneopatine blocks, stellates did nothing. The continuous use of the nasal sprays settled nerve activity down. Dental work troches helped. I also used ketamine topical cream on my face, refrigerator cold packs too. It's possible your cervical spine could be mediating your face pain or it could be vascular. Try clonodine patch and if it helps it might be vascular. My eyelashes and eyebrows used to feel like steel wool. Head pain no fun. You can use topical k on your neck too numbs pain signals when but on spine. Any questions send me a message.