You're kind of making yourself crazy now.

Acetycholine Receptor Antibody tests change over time. They DO NOT reflect the severity of the disease. Some antibodies are circulating ones and some are tissue bound, thus the change over time. Can't predict it either.

The hallmark of MG is fatigability, but it is also known to be highly unpredictable. Yes, it does vary greatly.

As far as the SFEMG, it can pick up weakness that you might not even "know" is there. Yes, they should test a weak muscle, but it has been positive in patient's who aren't even clinically weak (that is from an expert on MG).

You could wear yourself out for the test, but be cautious of going too far down that road.

Have you written down all of your symptoms and when they occur? That would help.

Do you know that it takes an average of one year for a man to be diagnosed with MG, but an average of 7 years for a woman to be? Yeah. So before you put your total trust in any neuro, remember that. If it were such an easy disease to diagnose (sexist blinders might help), they could diagnose everyone within a matter of weeks.

MG is a clinical diagnosis (thus the clinical exam) that is backed up with tests. A negative test proves nothing.

There's always the matter of a Tensilon test or a Mestinon trial. Has anyone mentioned that?

Which AChR antibody tests did they do? Did they do binding and modulating? Hardly anyone, including Mayo, does blocking anymore. Do you have your test results?

Try to be patient. You can't know the truth until you know it! Do you read the last page of a book before you read it, too?!

Annie