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Old 01-26-2016, 10:23 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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There is a lot of disinfo and even more misunderstandings about MG.

You know how athletes push their muscles to the limit, like runners do? Their muscles get weak at some point, cramp, spasm, and burn. The muscles of MGers just do that much more quickly.

Yes, muscles can "give out," but the spectrum of weakness is not that simplistic. Muscles can get so weak that they can be paralyzed. That's the extreme. And not all muscles are affected the same way at the same time.

Your writing/doing arm can be weaker than your other one. It all depends upon which of the 640 skeletal muscles are being used and how weak they get. There's no predictable algorithm for this disease, which can be a frustrating thing for left-brained people who need everything to be all neat and tidy (like doctors).

You might not have MG, but negative tests don't rule it out. As I said, ask them to send your blood to Mayo and redo the antibody tests.

There is no such thing as "mild" MG. That's mildly amusing. A MGer can go from having mild symptoms in the morning to severe at night. Or from day to day. It depends upon what drugs we're on, how much we do, how little we rest, the stability of the disease, etc. It can fluctuate greatly.

If an MGer gets overheated, for example, muscles can get rapidly weaker. (Heat increases acetylcholinesterase, which decreases acetylcholine.)

They taped your fingers together? Sort of a cheap version of the SFEMG, where you need to flex or raise muscles during the test. A person can have a negative RNS and a positive SFEMG.

Are you on any drugs? I'm asking because some drugs can make MG worse and some can interfere with test results.

See a neuro-ophthalmologist. A neuro is not qualified to do the testing that they do, which is very specific.

Getting diagnosed with MG is not as simple as 1-2-3. Give it some time!

Annie
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"Thanks for this!" says:
juliejayne (01-28-2016)