Originally Posted by Jerie

Hi, be relieved. I have fb RSD I get that all the time. It's a muscle twitch and annoying as hiccups. I also know another woman with gasteo paresis who gets an annoying Vegas nerve butterfly's. Goes on for days. I call mine liver hiccups. Never died or caused a Heath issue just annoying. Nerve signal weirdness is part of what I think are minor dystonia or muscle spasms symptoms. Muscle twitch is my best guess.
The weight loss is another issue. I lost 30 lbs rapidly was quite sick and thought I was going to die. It was a flare up. Drs saw me wasting and did nothing. It passed and I put it all back on. My best guess is a hormone imbalance caused by RSD. I read a book called Hear my voice by a woman who worked for the WHO and had that happen to her too. She was kind ok ottomh what WHO did to her but I related to her story all to well and could read between the lines. I have found flare ups last 3-4 weeks. Survive it emotionally intact and stuff passes most the time. For me anyways except bladder crap. I get infections and pelvic pain and bladder failure during bladder flare ups. If it dose not hurt ignore it. Support your body with good nutrition and calories during weight loss. I use superfoods too. Good luck and God bless you