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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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1 site biopsy
Quote:
Originally Posted by en bloc
In autoimmune based neuropathies, it can appear with or without abnormal morphology.
I am a bit surprised that you only had ONE site biopsied. There is no way to determine length or non-length dependent neuropathies unless you do more than one site. Why did they only do one? That is pretty rare, I think.
I am pretty sure other large, well known facilities, will accept outside samples for re-review. I just know for sure that Hopkins does because mine was done there and my neuro mentioned it in random conversation. I think Glenn has also brought this up before and I believe he listed several in the NY area. But I don't know about TX, David.
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I was only 4 1/2 months into my SFN journey and running around like a chicken with its head cut off trying to find out what was wrong with me when I asked my foot and ankle dr to do a skin punch biopsy.
He agreed and took two samples right above my ankle and no where else. My results from just that one biopsy site were 0...no A and C fibers left. (Bako Labs)
This was done before I joined this wonderful site and I had very little knowledge of what to ask for. If I had known I would have asked for several sites to be tested.
Did he only do one site because he's a foot/ankle dr ? Did he only do one site because I was very new to whatever was happening to me and he just did the one site because I asked for the biopsy myself instead of him suggesting it ? Because I was only complaining of my feet ?
I have no idea and I'm in Georgia, USA 
Guessing I got the short end of the stick ?  It has now traveled to my legs, arms, hands and mouth area.
Just wanted to let you peeps know my biopsy story.
Debi
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