Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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I used to have normal days. But I can only take Mestinon. Others who take IVIG or immunosuppressants do have normal days.
And if you aren't diagnosed or on drugs yet, there can still be fluctuations and "normal" days when you don't notice symptoms. As I said, hormones can influence that.
Have you had your thyroid checked? And please do get your B12 checked! It's a very common deficiency. A person needs B12 for acetylcholine synthesis. And don't accept 400 as normal. Most people need to supplement around age 40. For some, even younger.
Annie
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