Yes, she's not lucky to have such a condition, no one is. It's a miserable thing to get, perhaps especially so early in life, though really at any age. Suffering is suffering. And yes, it is frustrating not to know the cause and to not have a straight forward course of treatment. But at the same time it's important to appreciate what we do have, to set the goods, the privileges, etc., against the bad, the misfortunes, otherwise what's the point? As I see it, it's important not to be completely defined by or reduce to our illness, but to fight the good fight and to focus or keep an eye on the goods that we do have, and in her case her life is not pure misery as she makes clear, and this is obviously important to her. It's important for all sorts of reasons, however disheartening and debilitating this disorder can be. At least that's how I see it.