Thread: RSD and Sleep?
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Old 01-29-2016, 12:10 PM
Theodora Theodora is offline
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Join Date: Apr 2015
Location: Madison, WI
Posts: 22
10 yr Member
Theodora Theodora is offline
Junior Member
 
Join Date: Apr 2015
Location: Madison, WI
Posts: 22
10 yr Member
Crazy Sleep Update

I hate when threads don't reach a logical conclusion so I'll post an update here.

I went in for additional sleep tests and the conclusion is idiopathic hypersomnia and period limb movement disorder.

Treatment: for now, they have found my Iron to be almost nothing. My Ferritin is nearly nothing, Iron is too low, TIBC % saturation is too low, Hemoglobin is too low. B12 - through the roof high. Monday I go in for an Iron transfusion which the Doctor is super nervous about, which is making me nervous. Periodic Limb Movement disorder should be helped by bringing up the Iron levels. That leaves the Idiopathic Hypersomnia. Great, another idiopathic thing. I failed the narcotic trial, that didn't work. Gabapentin apparently could help. Otherwise it is stimulants. I don't really like that and I can't take them right now anyway. It's not really a conclusion but it's what we came up with for now.
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Age 32 - RSD/CRPS Dx 11/2006 with Severe Small Nerve Fiber Neuropathy and various recurrent issues and autoimmune disease.
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