Originally Posted by Pyr2

So, I am in a sticky situation. I have had undiagnosed symptoms for 2.5 yrs which are basically coming down to first cervical dystonia and then throat dystonia. I don't have any tortion or flexing with either, just the cramps, but Im told its dystonia, what do I know. No other real P symptoms.

Anyway, here is where it gets scary. I have also developed mild sleep apnea (although sleep dr says it was probably there for years before) and now urinary issues. I am super concerned about Multiple System atrophy and am going to a movement disorder specialist in February. I read that head/neck dystonia is a red flag for MSA.

However, it strikes me as odd that I would develop a motor symptom of MSA, for 2.5 years, yet not any of the other motor symptoms, i.e., Parkinson symptoms. I would imagine that all motor Parkinsons would have shown already. I do get some sleep onset twitching and myoclonus but I think thats normal in the general population.

Just wondering if your dystonia developed before, after or at same time as your Parkinsons. Also, anyone with urinary issues? Again, did you develop them before, after or with P?

Sorry for so many questions. I am 47 and have been on this merry go round for 2.5 yrs. I have 3 children, 2 of whom are very very young, and Im very very scared. With MSA on the table, Parkinsons sounds acceptable to me.