Thread: Coming Aboard
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Old 01-31-2016, 07:33 PM
aManHasSaid aManHasSaid is offline
Newly Joined
 
Join Date: Jan 2016
Location: Florida West Coast
Posts: 1
8 yr Member
aManHasSaid aManHasSaid is offline
Newly Joined
 
Join Date: Jan 2016
Location: Florida West Coast
Posts: 1
8 yr Member
Default Coming Aboard

Hello--

I've spent much of the past three years chasing down signs and symptoms, and working with numerous clinicians to find a good fit--one who has some experience with inborn errors of cobalamin (B12) metabolism.

I found a surprising number open to learning that B12 cellular malabsorption is not your grandfather's anemia. Further, am finally getting hooked up with medical geneticists who know how to better address this underdiagnosed pathology of cellular metabolism gone off the tracks.

I am also here to glean what I can in support of my CFS daughter (8 years bedridden) to ease her burden.

Good to be among you.

--aManHasSaid
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Darlene (02-03-2016), Lara (01-31-2016)