Kate,
There are a couple of Italian doctors on this list you might want t contact. Their emails are listed as well.
Dr. Fulvio Baggi
Dr. Cristina Vatteroni
http://www.miastenie.ro/_files/libra...kletZagreb.pdf
And if you read this, JJ, there's a Dutch expert as well.
Please contact one of them and see what they can do for you! You need some treatment really soon!
Annie