Member
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Member
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Thanks Annie,
You knew that I would be reading...
The Dutch name is not a doctor or expert, but the representative of the Dutch Neuromuscular Society. I expect he will refer me back to the person I already spoke with but I will follow it up. Thanks.
Kate, do follow up with the Italian doctors mentioned. It can be a long path to find someone who listens, and every opportunity should be followed.
JJ
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