Originally Posted by LouLou1978

Thank you Ragtop and Cliffman. I think stress definitely caused the pain to come out. The neurologist said that the anxiety had brought all the pain out.

If you think about it I had probably had abnormal nerve fibers for the previous 2 years without the pain. I've now gone down to 25mg Lyrica, and still no pain. I have a feeling I've been fooled by the Lyrica thinking it was working really well, but it was just a coincidence and that pain was getting better as I feeling less anxious and more like my old self again.

I'm going to keep on 25mg of Lyrica for another week then stop completely. I think i'm going to have to have a chat with one of the other neurologists and see what they suggest. This was a trial of IVIG and I am sure my neurologist said we could sit on it and use it when I was ready.

I really think stress does something weird to the nerve endings and somehow irritates the nerves making damaged nerves more painful.

Not sure whether or not it's gone into remission, or if its just going to stay the same. I would really like a repeat biopsy to see what has happened to the nerves. Even if it had stayed the same, I think it would be reassuring .