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Originally Posted by DavidHC
Thank you for this, Cliffman. Much appreciated. Nice summaries and general overviews. I think my neuro wanted me to see him, and after this I'm seriously thinking of reaching out and seeing if I can travel there for some quicker and more aggressive diagnostic testing. This is how a physician should be. Perhaps I can contact him directly. I wonder if they do thorough testing and fat pad biopsies for Amyloidosis too, among other things, say lip biopsies and GI ones, even if not in house.
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David I think he would be worth seeing...here's a link to the Phoenix site and they have an infusion center;
http://www.phoenixneurology.com/staff/levine.php
Cliffman