My husband has been to see his neuro today for carpel tunnel. He asked about me and the neuro said I can hold ivig for up to 12 months. I think I am going to hang on and wait and see. My neuro is back now so need to have a chat with him.

I would really like a repeat biopsy to see what has happened to my nerves, I am now reduced to 25mg of lyrica and still not getting pain so I just can' t believe it!

I am thinking this may not even be autoimmune, and could possibly be the metronidazole I took in 2012. My neuro said I would have to take an awful lot for it to cause neuropathy. Also haven't seen any cases of NLD SFN related to metronidazole so all very confusing.

I think my nerves are damaged by something, and stress and anxiety seem to bring out all pain.

Just wish I knew .