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Old 02-04-2016, 12:34 PM
boiler1993 boiler1993 is offline
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Join Date: Jun 2012
Posts: 157
10 yr Member
boiler1993 boiler1993 is offline
Member
 
Join Date: Jun 2012
Posts: 157
10 yr Member
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JohnnyJ - My symptoms have always been intermittent since they started. My first symptoms were when I was 19 (I am now 22) - however all my symptoms have been small fiber and it looks like with your emg some of yours are large fiber but I think a lot of the same thinking applies here. I was always looking for triggers and for me sometimes I can see the trigger that is causing the symptoms and other times not. My first symptom was water trickling down my leg (or the feeling rather) and that always happened when I got warm walking home from classes. I also had full body stinging triggered by erging (I was on the crew team at the time). But by far the biggest trigger I think is stress and lack of sleep. During stressful times (a good portion of my junior year in college I wasn't getting a lot of sleep and always working or studying and also when I first moved for my first job the first few months I had much more frequent symptoms) I always get sensitivity to my clothes. I started waking up in the morning with my feet burning and spend the day with sensitivity and that was when I decided to try medication which has been working well for me thus far (fingers crossed). What I did want to say is that I remember when my symptoms were intermittent always second guessing myself - like maybe I don't have anything wrong going on and I am fine or maybe I don't belong on this forum because I clearly am experiencing less pain than others and I would feel bad - my advice is trust yourself and try to find triggers but don't agonize over it! Not everything necessarily has a trigger and neuropathy is a sneaky little jerk so some things just cannot be explained. Also I think it is hard to see progression because it can be so slow - if I think back now to when my symptoms first started I would say yes I think they increased (hence why I tried out medication) but it was not rapid. Everyone is different with their neuropathy so just because your symptoms or progression is different doesn't mean it isn't there!

That was long - hope it helps Hang in there!
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"Thanks for this!" says:
DavidHC (02-04-2016)