NeuroTalk Support Groups - View Single Post - 12 Year old daughter suffering with Chronic Neck pain

thowell · 02-05-2016, 01:43 PM

Quote:

Originally Posted by Jo*mar

Just want to bump this info up- and add links-
if nothing is showing on MRIs or other testing - And TOS had not been ruled in or out by any drs or PTs ( only very knowledgeable DRs /PTs know enough about TOS to "see" it many have bias and dismiss automatically)

useful sticky threads - TOS - PT/DRs - Therapy -
http://neurotalk.psychcentral.com/thread84.html
http://neurotalk.psychcentral.com/thread135.html
http://neurotalk.psychcentral.com/thread125577.html

I actually had the best recovery with a very good gentle chiropractor-
he used ultrasound, IF stim, Low level laser, massage, gentle adjusting, trigger point work....

None of drs have rx'd Pain reliving PT??
* Not weights or thera bands!*
mainly the modalities I mentioned above - to release the muscles so they can soften..& loosen.

Or has RSD/CRPS been looked into at all?
http://neurotalk.psychcentral.com/forum21.html

She does have referral to see PT on the 15th of this month. It just takes forever to get into see them. The geneticists we saw (on our own) did list CRPS as one of the main possibilities along with Connective Tissue Disorder. However her pediatrician dismissed this idea.

Her insurance is a HMO so we cant do anything without her PCP and right now she is convinced this is all in DD's head. She will not order any further testing and has referred her to Pain Management and PT. So I hope and pray one of the docs we are referred to will see something different and be able to convince her PCP to move forward in further testing. Thanks for the info and links looking them over now.