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Originally Posted by Jo*mar
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She does have referral to see PT on the 15th of this month. It just takes forever to get into see them. The geneticists we saw (on our own) did list CRPS as one of the main possibilities along with Connective Tissue Disorder. However her pediatrician dismissed this idea.
Her insurance is a HMO so we cant do anything without her PCP and right now she is convinced this is all in DD's head. She will not order any further testing and has referred her to Pain Management and PT. So I hope and pray one of the docs we are referred to will see something different and be able to convince her PCP to move forward in further testing. Thanks for the info and links looking them over now.