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Originally Posted by JimD
. It started out of nowhere back in September. I woke up one morning and felt my toes slightly numb and frozen feeling and tingling from my feet to my knees.
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Your story sounds eerily similar, Jim.
One of my several theories on what has caused my neuropathy is that it's something spinal that is not yet understood and/or not yet detectable through MRIs.
Like you, I'm usually pretty symptom-free when I wake up, although I do have this odd "buzzing" going on. As soon as I start moving, though, it goes away (and my back usually hurts when I first wake up). As the day progresses, and especially in the evening, the burning will start setting in. I usually start feeling some relief when I go to bed, although not always. Early on, I was especially had a hard time sleeping.
Twice now in my life I've had two instances of multi-week increased intercranial pressure. That's my diagnosis BTW. Doctors never put a name to it. I felt like my brains were trying to explode out of my head. It wasn't painful, just this horrible pressure like sensation. I also experienced brain fog with it. When I first experienced it back in the 80s, the neuro believed it was related to cervical problems I had which have gotten progressively worse. I had another episode of it in August of 2013, and my neuropathy set in two months later. I also hurt my neck in October. I've had MRIs from top to bottom showing a lot of problems, but nothing that would cause neuropathy.
So I think it's a possibility this could all be spinal, and it's just not understood yet.
But ask me tomorrow, and I'll tell you something different.