Quote:
Originally Posted by Neuroproblem
they cant try harder, because NEUROPathy have so many causes, and some of them are unknown, so there is no base where they can start. Something like a common cause of pn, can be seen as idiopathic because of unusual presentation. so in the end they will randomly throw medication at you, or in some cases they will say you are making it up or looking for drugs to get "high".
you seem to also have autonomic neuropathy. those drugs appears to only mask the pain, not suppress like anti-inflammatory. Ivig is very expensive, which is why there is hesitency, and also it might not work for everyone with pn. it is because neuropathy has so many causes, it hard to point it at "diabetes, sogrens, or some wierd diseases
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Neuroproblem I know you are right in your analalsys but I refuse to accept that they can't try much harder to find the cause. After all there are any number of cancers and types of arthritis but they research these like crazy in order to save lives or improve the quality of life for sufferers. So why do they accept that with PN they can say "cause Unknown" so readily or dismiss as a psychiatric issue? I'm clinically diagnosed so presumably they aren't saying its psychological and I'm a pretty rational, healthy living type so all I'm saying is that they should try harder with neuropathy to find the cause because it costs society/ the tax payer if I end up unable to work (as I did last year) because of symptoms or drug reactions. If they tried IViG and it made no difference then this would suggest mine wasn't immune mediated whereas if it worked they could have a more functional member of society who would be costing the tax payer less in other ways. I find it short sighted and frustrating that they bandy around this term idiopathic so readily. Idiotic and pathetic is how it sounds to me!!
