Legendary
|
|
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
|
|
Legendary
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
|
The challenge with neuro-rehab is where they set the bar. Most brain injury rehab is for patients who have lost a lot of function. For many of them, returning them to a functional level similar to where many with PCS are is considered a success. It is helpful to find rehab specialists who are good at working to get the patient improving past that point.
Another way of putting it is. If we can walk, talk, eat, and tie our shoes, we are in good shape. They may not consider that the pace and persistence with which we can walk, talk, eat and tie our shoes may be sorely lacking. If we crash after 20 minutes of talking or doing another task, they may not have a concern.
Much of the 3 hours of testing may be for motor function testing. Maybe a light board. Some organizational skills (kitchen tasks) and such may be tested.
So, you may get frustrated thinking, I can easily do abc... but I can't do or tolerate xyz....
Try to give yourself room to fail or manifest a symptom, like saying, I can do this one task but if I need to do it for an hour, I will start messing up. There are some struggles that do not show up until 15 or 20 minutes of repetition when they hit an over-attending level.
It is worth a try. Hope you get a good diagnostician.
__________________
Mark in Idaho
"Be still and know that I am God" Psalm 46:10
|