Hey there,
Has all this happened since your appendectomy a while back? Ugh, of all the rotten things... I am sorry to see you going through so much. PICC lines and feeding tubes do not belong on a young body.
I don't remember if I put this up for you or maybe you have seen it already. It is an article by Dr. Schwartzman on the "Systemic Complications of CRPS". It is I hope a worst case scenario kind of thing and not everyone will get these complications but it is useful information. You are right there isn't much out there about internal spread and treatment.
http://rsds.org/wp-content/uploads/2...ns-of-CRPS.pdf
Did you ever get ketamine?
Sending hugs and healing love for what they are worth,