Originally Posted by catra121

I am so sorry to hear about your struggles and wish I had some advice to give you regarding treatments. I had the pain spread internally to my abdomen after having a c sections last year when I gave birth to my daughter...but aside from the pain and weight that I just can't get rid of and being permanently stuck in maternity pants thanks to said pain I haven't had to deal with too many complications since the spread.

Regarding the drs though...when I was 27 and my RSD was spreading all over very aggressively and I couldn't get any answers or help I had my primary care doctor (who had been my dr all my life and was even the one that delivered me) tell me that I might just need to get used to life in a wheelchair. That was the last time I saw him...made a phone call on the way home with a new dr and my life started to get better after that. I really believe that once a dr has nothing left to offer you...you need to move on and get a new set of eyes on things if at all possible.

My life drastically improved after switching drs...I was able to get out of the wheelchair and back to my full time job (using a walker...but so what) and now have a beautiful daughter who is just over a year old. It was a slow process...but I got there and I believe you can and will get better. You are too young to give up and if your drs can't help you then find someone who will.

If you continue with the Ketamine then I hope they have a cumulative effect and can get you some much needed relief. Take care and remember that we are all here to help you and support you. This forum and the people here have been so important to me in helping me manage this horrible condition.