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Old 02-10-2016, 01:58 PM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
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Quote:
Originally Posted by chris85 View Post
Hi has anyone else experienced a burst of ibs type symptoms immediately preceding tingling in knees, hands and other neuropathic symptoms? I had lots of stomach noise, constipation and lack of appetite then the tingling started, I was a pretty fit 28 year old guy. No other symptoms really, sleep was ok, no fatigue, no brain fog. My b12 has been tested and it is ok apparently. I wonder whether this GI problem is related to autoimmune attack of nerves or some kind of weird malabsorption problem. All inflammatory arthritis tests have been negative, but main areas are knees and arms. I'm on lyrica, fish oil, and vitamin d. This has been going on one year now.

Hi Chris,

I already have confirmed autoimmune problems but the neuropathy was a new thing. So, I had stomach problems come in just before my SFN started. This stuck out for me as my tummy problems were strange and unexplainable to me. Symptoms weren't the same as yours however. I had loss of appetite, so bad that I would down those meal replacement drinks. I desperately wanted to eat to sustain weight but something just went awry. I then had feelings of anxiety in my stomach ( I know 100% this was not emotionally enduced anxiety despite doctors efforts to pigeonhole me in there). I had bowel urgency, not diaorreah but urgency and the feeling that way too much was going through my body and out. So not constipation. I was worried as to what was going on as it was so strange and felt very wrong. Then the sfn came on. My sfn is believed to be inflammatory/ autoimmune in nature.

Do you only have it in knees and hands?

Mine started in unusual places as opposed to feet - buttocks of cheeks and thighs which supports the inflammatory nature hypothesis apparently.
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