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Old 02-11-2016, 12:32 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
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Quote:
Originally Posted by kiwi33 View Post
"There is plenty of help from dr google and this dr is free."

I agree with this but please remember that Dr Google has neither scientific nor medical qualifications.

I think that a healthy dose of scepticism is a good idea when interpreting a search - there is a lot of poor-quality information on the Web.

A "second opinion" from a reliable site is a good plan in my view.

Some reliable sites are:

PubMed (http://www.ncbi.nlm.nih.gov/pubmed)

The Linus Pauling Institute (http://lpi.oregonstate.edu/)

The Cochrane Collaboration (http://www.cochrane.org/)

NIH (http://www.nih.gov/)
http://www.hopkinssjogrens.org/disea...complications/

Yes thanks for these links. I would like to add my latest favourite link from doctor googling.

Re Caroline's point about acceptance - I would also want to respond by saying that I think that acceptance is all very well if you are older and have a musculoskelital cause for your neuropathy ie arthritis or post operative nerve entrapment or sciatica. But feeling that your small nerve fibres are slowly dying off in droves and you are having autonomic and proprioception issues at a younger age makes it less likely or appropriate that a person can just accept these symptoms or the resulting deterioration surely?

Look at the amount of money that goes into cancer research. If a fraction of this funding went into researching disorders of the peripheral nervous system then we would know much more - especially where it comes to autoimmune forms of neuropathy. If the fundamental cause of the the SFN is discovered then I do firmly believe, from personal experience, that the SFN might be slowed right down or even halted in its tracks or reversed.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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