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Old 02-11-2016, 04:35 PM
drpdhmr drpdhmr is offline
Junior Member
 
Join Date: Oct 2013
Posts: 18
10 yr Member
drpdhmr drpdhmr is offline
Junior Member
 
Join Date: Oct 2013
Posts: 18
10 yr Member
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I was diagnosed in 2012 and had a 2.5 cm thymoma that was found about a year later. I opted for the VATS thymectomy that only required 4 incisions. From what I read the trans surgery isn't more effective; just takes longer to recover from.

The good news is MG is controllable in most cases, but expect it to take a while to figure out which meds work best for you and at what dosages. In my case I started with just Mestinon and then got worse so had to start Prednisone and IVIg on occasion as needed.

I'm now working on tapering off Prednisone and taking Imuran. I've had some good runs (went over a year on just Prednisione) and some back times as well that required hospitalization.

MG is a journey that never ends, unless some day they find a cure. Find a great neurologist and expect some ups-and-downs in the beginning, but know that it will get better.
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