Quote:
Originally Posted by MAT52
Neuroproblem I know you are right in your analalsys but I refuse to accept that they can't try much harder to find the cause. After all there are any number of cancers and types of arthritis but they research these like crazy in order to save lives or improve the quality of life for sufferers. So why do they accept that with PN they can say "cause Unknown" so readily or dismiss as a psychiatric issue? I'm clinically diagnosed so presumably they aren't saying its psychological and I'm a pretty rational, healthy living type so all I'm saying is that they should try harder with neuropathy to find the cause because it costs society/ the tax payer if I end up unable to work (as I did last year) because of symptoms or drug reactions. If they tried IViG and it made no difference then this would suggest mine wasn't immune mediated whereas if it worked they could have a more functional member of society who would be costing the tax payer less in other ways. I find it short sighted and frustrating that they bandy around this term idiopathic so readily. Idiotic and pathetic is how it sounds to me!!   |
yes its pretty annoying when doctors dont give you answers when theres obvious problems. giving someone a "psychiatric" diagnosis, or throwing medication is easier than finding an unknwon cause, with anxiety/depression they can use it as an excuse to dismiss your other symptoms. neuropathy is pretty hard to find a cause, unless its from well known associations, diabetes, spinal injuries etc. Neuropathy/ or pn also is not well understood as a symptom, and is often seen as a patient is making it up because he or she has anxiety.
I assume you are using socialised health care? this is where it gets very political, as many people do not want a socialised health care"in the us as an example", because they are afraid of the "quality of care", and it gets very political(which i dont want to discuss here). PN doesnt have as much notierity as cancer and arthiritis, cancer because of its awareness, arthiritis is famous because its medications/advertisements of monoclonal antibodies. even i havnt heard of pn til i started researching it a little over a year ago. the most common cancers get the most research and attention, the rarer the malignancies, the poorer the research, treatment, and prognosis for patients, and it is often misdiagnosed as other cancers. it is because anxiety/depression sufferers often complain of PN issues, which why doctors will dismiss it as a symptom.