Thanks for these answers. But,... it seems as if there are no answers. There is pain when it is healing and pain when it is dying, ...until it is dead. And like Dalek, I suspect a sudden return of regular sensory feelings would just be painful because it would not be something that the body is familiar with. I'm happy to report that I've caught up on the Lyrica dosage, and things are back to their dull roar. But at the same time, I'm very worried that things are getting worse.

It's just so hard for me to judge anymore because of the arthritis and osteoporosis issues. The sacral fractures have affected the nerves and I've found that a Lidoderm patch helps a little but still it feels as if I'm sitting on an electric wire that is live. This is nothing new for me, but it just seems worse. And my head feels a little like Dalek described..a gyroscope spinning in space. I no longer feel that I can walk without the walker or holding on to something. But there are times when I can. I just don't feel safe doing it because I'm worried that at some point I will fall.

I know Sjogren's is progressive, but how do you know when it's progressing when you are sero-negative? It's all just a big puzzle and I don't think there is an answer.

Billye