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Old 02-12-2016, 02:51 PM
Starburst Starburst is offline
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Join Date: Sep 2015
Posts: 32
8 yr Member
Starburst Starburst is offline
Junior Member
 
Join Date: Sep 2015
Posts: 32
8 yr Member
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Quote:
Originally Posted by MAT52 View Post
Hi S. If you read my conversation with Enbloc here you will see that I have asked if it is possible to have AN without OH - bevause I only have hypertension currently - and she replies yes it is. I don't know how easy this non OH type would be to diagnose though.

I never remotely suggested that I have gastroparesis - not nearly in that league. However I don't want my consipation diminished to common! Mine isn't normal for me and is becoming chronic and my stools have completely changed from my normal. I don't think it's common if you don't normally suffer or eat foods lacking roughage or aren't taking meds such as codeine.

The GP is not interested in anything more complex and anyway I'm between GPs just now. It never occurred to me that my constipation was a neuro issue until the GP said she thought it might be for me, along with my rising inflammation levels (PV and CRP). The things that make me think I have AN are because of the progressive SFN, dizziness/ spatial issues, total inability to sweat, strange tastes (long before the constipation started), heart palpitations, and loss of sense of smell (this has been quite useful recently though with our drain problems!). Hope this explains. Mat/ Twitchy/ M x
I have to admit that my knowledge of neuro stuff is incredibly limited, I suspect you know more than me. I only know the basics, mostly about the common diseases that I come across at work; MS and MND.

All I was saying is that AN can be conclusively tested for, so it's something that your neurologist can rule in or out. Also, that there won't be one overall treatment, it is symptom management e.g. laxatives for constipation. It's not like other more complex conditions like SLE where diagnosis can be long and erm, what's the term, subject to change and according to opinion. You know what I mean; in that some rheums say seronegative SLE cannot exist, some disagree.

I hope you find the answers you are looking for with new neurologist.

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"Thanks for this!" says:
bluesfan (02-14-2016)