Danny,

I've wondered this too.

I can speak for myself only. After my head injuries I pushed through symptoms and felt worse than immediately after the injuries. I went up and down and up and down so many times. Out of the 900 or so days of having PCS, I've spent probably 200-250 days functioning at 5-15%. In the past 8 months, I've gone from 5% to about 70-75% at home. I can only hope that I continue to see progress.

I recently started graphing the amount of time that I am active versus taking a break and finding a percentage of active time over total time awake. That's how I get the number 70-75%. I also calculate the ratio of active time to rest time to see about how many minutes I need to rest per number of minutes I'm active. I just started last month, but it's encouraging to see the progress. I use Office Excel.