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Old 02-14-2016, 09:18 PM
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madisongrrl madisongrrl is offline
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Join Date: Jul 2014
Location: Midwest
Posts: 584
8 yr Member
madisongrrl madisongrrl is offline
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madisongrrl's Avatar
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
8 yr Member
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Quote:
Originally Posted by Marie33 View Post
Madisongrl you use the word heal. Is your sfn better? Do you feel like you have healed?
I've been getting better every day. My burning has greatly reduced in all areas of my body.

Quote:
Originally Posted by Marie33 View Post
I see you take "low does Naltrexone", does/did this help you with your pain. Should I ask my Neuro about this medication? Maybe it can help Mickey with his symptoms?
LDN has seemed to helped with the pain, along with the antibiotics. I take 2.5mg of LDN each night before bed. This might be a good drug for you to try, especially if there is a suspected immune/autoimmune component to your SFN.

Quote:
Originally Posted by Marie33 View Post
Have you ever tried taking Prednesone and has it helped you? My sfn is still "Idiopathic" even tho the latest blood-work, after 5 years is leaning towards some autoimmune deficiency/disorder or disease. I don't know anymore. I'm also scared and confused about my future. This "disease" has taken over my life. Is there anything you can offer to help "us".. Ty
I've never taken steroids; they are contraindicated with Lyme disease.
__________________
  • Gabapentin, Nortriptyline, & Low Dose Naltrexone
  • Methylcobalamin/Methylfolate, & Vitamin D3/K2
  • Phosphatidyl Choline, Phosphatidyl Serine & Probiotics
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