Quote:
Originally Posted by Marie33
Madisongrrl, Thank you for responding. I will talk to my Neuro this coming Thurs about the LDN. If I understanding you correctly, Lymes is the cause of your sfn? What did you take that reduced your burning?
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Yes, Lyme disease is the cause of my neuropathy (large and small fiber). LDN and antibiotics reduced the burning. I can wear shoes now without pain.
Quote:
Originally Posted by Marie33
And does Nortriptyline help your pain. Do you get any SE's with it. I tried Amitriptyline but it caused skipped heart beats. Plus my BP is normal to low, and Doc said it would probably lower it more. I would love trying it after reading what MrsD wrote, that it could have some "healing" affects.
Could that be why your getting better?
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Nortriptyline helps with my facial pain. I have nerve pain that runs from the left side of my throat all they way to my eye. If I cared enough to follow up with my neuro, I would suppose that it would be classified as atypical face pain. Nortriptline does help with that. I've run out of it before and also tried to quit it....but I can't because my face starts hurting to the point where I can't function. I had a reduction in burning withing 2 weeks of starting LDN and antibiotics; so this is really what has made the biggest improvement in the quality of my life.