Member
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Join Date: Jul 2014
Posts: 153
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Member
Join Date: Jul 2014
Posts: 153
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Bachissimo blog
I would find it useful if some of us, those who have been unlucky enough to deal with this for a long stretch of time, can have a dedicated blog to track our progress (or lack of it).
I am not feeling well enough to write the full story, but the very summarized version of this is as follows:
- impact on July 1st 2014
- virtually a full recovery by mid august. running, sprinting, weights, reading, watching,... never a headache, no moment of dizziness. the only weird this is that I heard this ticking sound in my head/neck when I went to sleep sometimes (for a minute)
- flight to europe and back in end-August. The same day I am back I went on a treadmill, and had a moment of vertigo (or a skipped moment (?) more on this later). The months that followed were the worse I ever lived (went through breakup too): dizziness/light headed (main symptom), headaches, fatigue, insomnia, depression. Off work for 2.5 months.
- very gradual improvement until july 2015, where I felt good on most days. if I average, perhaps an hour of dizziness a day.
- flight to europe and back in August 2015. Got dizzy there, and when I came back. I understood that flying was an important trigger but still did not appreciate the full extent of this. Within 2 days, I go for light workout and a push-up gives me vertigo (or a skipped moment (?) more on this later). Again 2 months off work. Dizziness, headaches, insomnia... But this time I developed new triggers: noise! and reading automatically makes me worse. Wasn't to the same extent the previous year. The previous year I could play piano, now I can't without getting dizzy.
- by Jan 2016: I am on an antidepressant (lamictal), I use clonazepam to sleep (direction of my pscyhiatrist) and exercise lightly at direction of neurologist.
I had some good weeks, when I almost forgot about PCS only to have a trigger set me off for weeks.
DIZZINESS is my main problem. I do not mind headaches as much, as I can take medicines for that, although one day I overdid Ibuprofen and had stomach issues. When I read this forum I only compare myself with people who experience dizziness, as it is possible that the root causes of different symptoms are different (obvious?).
I am waiting for my insurance to start my vision therapy. I have convergence problems, and since my second flight, it became obvious that reading is a major issue.
the more I rest the better I feel. But eventually I get sick of resting, so I go back to working, I try to pace it, but eventually, PCS will catch up on me.
suspicion: since I am the only case I found so far where flight was, without a shadow of doubt, a MAJOR set-back (equivalent to another concussion), I suspect something else is going on. I am thinking that perhaps I had a mini-seizure(s) on the flight or when I got back. IS THAT POSSIBLE?
I track my symptoms everyday, and eventually I will upload a chart that can speak a million words about what I am dealing with.
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