A friend of mine developed symptoms such as yours which turned out to be Guillain-Barrre Syndrome. The significant difference between his symptoms and your description of YOUR symptoms is that Guillain-Barre, in my completely unprofessional understanding, usually begins with paralysis from the feet UPWARDS. You've described symptoms starting in the head traveling downwards. In any case, you might try researching it. Also research Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) and Fibromyalgia. Both Guillain-Barre Syndrome and M.E. seem to be Viral in nature. In other words, the conditions are preceded by an infection. I'm not a doctor and it seems as though you've consulted several. I would keep asking until someone comes up with an explanation. You are your own best advocate. I'm so sorry you are going through this. Hopefully these have been helpful suggestions. Will be thinking of you and hoping you are given an answer-the right one.