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Old 09-23-2006, 08:25 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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<BEGIN>

I'm in a position to report early, very positive results with "banding" (on purpose experimentation this time, as oposed to serendipitous find repored earlier on PDPower).
Yesterday, I used my jeans belt (wider than a regular dress pants'belt) to band around my shoulders in a manner that I could work the tightness of the banding by simply propping out my chest against the fixed lenght of the loop as I felt I needed. This way, I was able to go, without ever switching OFF, from the beginning of the experiment at about 4PM, till I went to bed, at 10:30PM, i.e., 6.5 hours, stretching my doses to the max, in between, which would have normally caused me extremelly excrutianting rigidity every two hours. My condition did still oscillate from best to worst with the level of medicationbut, but I repeat, my worst did not include "OFFs" as usual.
This morning, I'm off to what appears another good day. I plan to continue experimenting with banding to gather data on repeatability and consistency of results, and what to me would be of paramount interest, to diminish my total and extreme dependency on levodopa, signalling the possibility of disease reversal.

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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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