[QUOTE=Marie33;1199448]
Quote:
Originally Posted by madisongrrl
I've been getting better every day. My burning has greatly reduced in all areas of my body.
LDN has seemed to helped with the pain, along with the antibiotics. I take 2.5mg of LDN each night before bed. This might be a good drug for you to try, especially if there is a suspected immune/autoimmune component to your SFN.
I've never taken steroids; they are contraindicated with Lyme disease.
Madisongrrl, Thank you for responding. I will talk to my Neuro this coming Thurs about the LDN. If I understanding you correctly, Lymes is the cause of your sfn? What did you take that reduced your burning?
And does Nortriptyline help your pain. Do you get any SE's with it. I tried Amitriptyline but it caused skipped heart beats. Plus my BP is normal to low, and Doc said it would probably lower it more. I would love trying it after reading what MrsD wrote, that it could have some "nerve healing" affects.
Could that be why your getting better?
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Hi Mgrrl,
I wrote to you in another post too. I just wanted to ask you why you thought LDN might be good for me? Today I found out that my SFN may be autoimmune mediated. Neurologist says my Serology report (bloodtests) showed my Carbonic Anhydrase is elevated. So this means I have an Inflammatory autoimmune disease. ( I have no idea what that means). He gave me Medrol Dosepak (Prednesone) to try for a few days. I asked about LDN for my pain and he said he doesnt use it. What are your thoughts. Should I just ask my Pain Management Doctor on Monday?