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Old 02-20-2016, 09:20 AM
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ElaineD ElaineD is offline
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Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
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ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
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Nerve damage from PN is described as moderate, severe and profound in the evaluation of the Nerve Conduction test results.

There are three major nerves in our legs:

Two of my nerves have NO response to stimulus. For all intents and purposes they are 'dead'. This is described as PROFOUND.

The remaining nerve is severely damaged.

Here are my testt results:

Findings: i. Markedly decreased amplitude of the right and left peroneal and tibial nerves. 2. Decreased conduction velocify of the right and left peroneal and tibial nerves. 3. Increased motor latency of the right and left peroneal and tibial nerves.
4. Increased sensory potentials of the right and left sural nerres.
5. Absent latency of the left peroneal and left tibial F-waves. 6. Delayed Iatency of the right tibial F-waves.
7. Delayed latenc-v of the right and left H-reflex.

INTERPRETATION: 1. PROFOUND AXONAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
2. PERIPHERAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
3. RIGHT AND LEFT SURAL NERVE NEUROPATHY.

Without my braces I can not walk 20 feet without resting. Every muscle in my body stays engaged and I stagger side to side, my legs cross without warning, my foot drags on the ground, and I am exhausted after a minute.

My legs were atrophying seriously. My knees were knocking and my feet were turning in.

I 'flunked PT' because I could not improve on tests no matter how long I trained.

I began to use a walker.

Then I thought of braces, did some research, and asked my neurologist for a referral to a company that provides prosthetics and orthotics. Braces are called orthotics.

My braces are ankle foot orthotics or AFOs.

https://www.allardusa.com/carbon-com...stability.html

This video of another person with a different brand shows how I can now walk:
https://www.youtube.com/watch?v=TGS_bS_cnBU

If you want to know more, just ask.

I should have done this SIX YEARS AGO when I had the first diagnosis. But I'm getting better now and that's what counts.

Hugs, ElaineD
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