Hello everyone.
I'm hoping here I can find some support and help or similar stories. Last December I began having really bad migranes. I thought my prescription was bad in my glasses as I hadn't been to the eye doctors in YEARS. with no vision insurance I was reluctant but I went. After the normal tests the doctor sat back and asked if I had anyone with me and I said no but knew he was about to tell me something bad. He said he thought I might have glaucoma. I laughed and said that was for old people. He said the pressure in my eyes was elevated for my age (24 about to be 25) and that the cords that send messages to my brain were thin like strands and if they got too thin would snap and I could go blind. I went and saw another specialist who said I was border line. I never thought about asking at the time but in December, my eyes started to what I describe as 'flicker'. It's almost like looking through binoculars at ana object and rapidly shaking them back and forth for a split second. I don't know how else to describe it to normal people.. but it's gotten worse this year. I went back to the specialist and tried to explain what was going on and they thought I meant eye lids. When i said my vision! My eyeballs! They sent me to UVA. there i saw a world renowned specialist to be tested for everything possible under the sun... only to be told there was nothing wrong with my eyes and that it was neurological. I left crying. I wanted answers. My migranes were so bad I was throwing up and in bed almost 3 and 4 days out of the week. I went back to square one and saw a doctor. An amazing one and got an mri. They found a pineal cyst. So I went to duke and was told it was probably nothing and put on topomax to help with "chronic migranes". I have all the side effects that come with the drug and it has done nothing for my symptoms. I had another mri this week and waiting the results. I see the dr. In duke this friday. Here are my symptoms:
Migranes, eyes pressure, eyes pain - I have a had a constant base line headache for over a year. The pain NEVER ends the headache is always there. The pain never goes away no matter what I take. Migrane pain does not go away no matter what pain meds I take. Tried taking 4 different prescribed migrane meds preventative and pain killers They don't work. I see stars when I look around like someone punched me in the eyes. I have no energy. May be a coincidence but I have low vitamin d and 2000 mm for 18 weeks and levels are still in the teens -was like that before taking topomax. I now deal wi th all the side effects of topomax. I believe the eye pressure the eye doctors found and my eye pian, constant headaches ad migraines are all due to the cyst. I know brain surgery is risky but I can't live like this I have no energy and I'm always in pain. Everyday i hurt. Am I crazy to want the cyst out? I am afraid the doctor at duke will not be on my side