Junior Member
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Join Date: Sep 2015
Posts: 32
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Junior Member
Join Date: Sep 2015
Posts: 32
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Thank you all for your helpful replies. I've been recommended a specialist who is apparently the top man for autonomic issues in Europe. I'm not even going to ask for an NHS referral but will pay for this to speed things up. I'm only 27 but only living part of a life when I feel there could be so much more.
en bloc It's not always to easy to get your voice heard in the NHS but I know I need to push a bit. I've been loathe to explore things too much as I'm worried it will impact on my job for which I need to be able to drive. I'm on medication for the Gastroparesis. I already take domperidone as well as a couple of other anti-emetics which help to varying degrees.
SylvieM Thanks for sharing your story. You've certainly faced some challenges. I appreciate you outlining the names/diagnoses. My gastro referred to it as a sensorimotor disorder in one letter!
stillHoping The gastro prof strongly believes that if we treat the underlying cause (my autoimmune disease) then my symptoms will settle. There is certainly a link between when my inflammation levels are high and when my vomiting and fainting are worse. Thanks for the article and info. I will sit down when I'm less tired and have a proper read.
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