Hi Mat,

Just to clarify terms. Dysautonomia is an umbrella term used to describe a deregulation of the autonomic nervous system. There are many condtions and diseases that can be placed under it... autonomic neuropathy, POTS, neurocardiogenic syncope, and more serious illnesses like Multiple Systems Atrophy. If you Google "dysautonomia" you can find several websites that explain this in detail. Wikipedia is also a good start.

You can tell from this site relatively few posters who are suffering from "sensory" small fiber neupathy...like most of the painful spreading symptoms you describe in your post.... also have autonomic neuropathy.....yet the potential is there...for small nerve fibers are involved in both. I also read on a dysautonomia website that only about 3 percent of people with POTS have sensory neuropathy.

I have both...I began with dysautonomic symptoms and so far I find them far more disabling....but like you, I worry about the sensory spread. I'm sure others will weigh in here....for I'm a bit confused about how it appears most people with sensory SFN don't go on to develop dysautonomia.

I hope you move opens a door for much better treatment for you!.

Sylvie