Thanks Pogo, but that's a wish/dream for me. I do, now, have a pcp who is listening. But as far as neuros are concerned, where I live we have a very limited number. It seems if one gives a diagnosis others are VERY reluctant to revise or contradict the given diagnosis. I may need to travel interstate to actually obtain a fully independent opinion.
I was recently told by a neuro that my continuing pain is caused by CTTH (Chronic Tension Type Headaches). Now the old theory was that stress causes the muscles in the back of the neck to tighten, thus pulling on the back of the skull and scalp, causing the HA. Depending on who I talk to it seems this theory has been altered/updated. Some specialist believe the discomfort from a HA causes a frown and this pulls on the muscles through the scalp and exasperates the HA. Others believe it may be related to blood flow within the brain. When I mention this to other neuros I have been scoffed at and told that as the brain has no pain receptors, so my HA pain is not within the skull. It certainly feels like it is. Hence the statement "It's all in your head..."All I can confirm is that I'm in pain everyday. The intensity and duration are variable and I 'try' to push myself thru the pain at times, which probably does not help in the long run but I need to be active or I get a bit stir crazy lol.
So let's see what comes next. One day I'll wake up and it will all be gone WOW, now there's a wish lol
When I was working, prior to '13, I worked with people with disabilities. Primarily intellectual disabilities and brain injury clients but I have worked with the whole range of disabilities from physical to sensory, so I have seen some of the 'worst case scenarios', and as bad as things are for me, I know they could be a HELL of a lot worse. Now, this is going to sound very selfish, so I'll apologise before I say it, but when I'm at my worst I can look back at those clients and think "...well, at least I'm not there..." and I so easily could be. So if this is "as good as it gets" then I have to work within these limitations and that is difficult. Its all about management. Pain management, medication management and symptom management and that's what I do now. Manage

Merl