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Old 02-24-2016, 12:59 PM
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Marie33 Marie33 is offline
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Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
Marie33 Marie33 is offline
Member
Marie33's Avatar
 
Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
Unhappy

Quote:
Originally Posted by Healthgirl View Post
As some of you know I have been going to a functional md who is treating me for mycotoxins with cholestyramine. I am taking an extremely low dose. I'm not having any bad effects, but don't seem to be having any good ones either.

This morning I went to a gastroenterologist and presented my neuropathy case, copper deficiency, anemia, and malabsorption.
I showed him the photos of my vascular rash, and the ones of my daughters that we started getting in the sun last year. Also about the kids on and off diarrhea. He agrees that it is pretty clear that some type of exposure has cause this (as does my local neurologist, and functional md).
He said there are some strange things that can happen from mold and not to rule that out.

I am terrified of taking this, but he said if we do have a parasite, it will not go away with out treatment and that people can have Giardia for years.
He also was curious about lyme and other tick born stuff that could have gotten us. I told him I did 3 weeks of doxycycline in the beginning when they thought it was lyme and that it had no effect. At this point I don't know what is left besides troubleshooting with drugs. I don't want to live life this way unless I have to.
Any and all advice or information is welcome.
Hi Healthgirl
Im a bit confused. You say your going to a functional md who is treating you for mycotoxins with cholestyramine. What is that and how did you find out that you have this? And what is Giardia? Do your Doctor(s) think these "infections or viruses" are causing your neuropathy?
Thought I would chime in on the Lymes...I still can not get some kind of accurate Dx for my sfn..My Rheumatologist did bldwork, she said 3 bands came back showing lymes (I think thats how she means it). She said 3 "infected" bands are not considered lymes , I would have to have 5 bands for the CDC to consider treatment for lymes. I also have one sightly low Subclass 3 IGg. She wants to retest me in 3-6 mos. Does any of this make any sense to you?
I'm sorry your feeling overwhelmed, I know that feeling all to well.

Last edited by Marie33; 02-24-2016 at 08:08 PM.
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