Quote:
Originally Posted by Marie33
Hi Healthgirl
Im a bit confused. You say your going to a functional md who is treating you for mycotoxins with cholestyramine. What is that and how did you find out that you have this? And what is Giardia? Do your Doctor(s) think these "infections or viruses" are causing your neuropathy?
Thought I would chime in on the Lymes...I still can not get some kind of accurate Dx for my sfn..My Rheumatologist did bldwork, she said 3 bands came back showing lymes (I think thats how she means it). She said 3 "infected" bands are not considered lymes , I would have to have 5 bands for the CDC to consider treatment for lymes. She wants to retest me in 3-6 mos. Does any of this make any sense to you?
I'm sorry your feeling overwhelmed, I know that feeling all to well.
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I am very confusing and confused too.
As I still have not found the cause for my neuropathy, I haven't given up and every once in a while, I make an appointment to see a new specialist with my test results and what ever research I can present. I originally went to a lyme dr who wanted to aggressively treat me for bartonella but I was very scared to take so many drugs. Then my kids and I started having an identical vascular rash and it became clear that they also were affected by whatever got to me. Thank God there symptoms are more mild than mine, but they are disturbing and no doctor knows what to do.
I became less convinced of the lyme and thought more along the lines of toxic exposure. Either way-something got to us and I can't give up.
I went to a functional md (knowing) that they usually diagnose mycotoxin or lyme. I did happen to find mold in my old house and being that we are all affected, it made sense to go with the treatment especially because it is very safe and short term. (Cholsestyramine for about a month to "bind to mycotoxins". That's the theory anyway. I am 3 weeks in and have no improvement. In the mean time, I went to a gastrointestinal md and showed him 2 old case reports of people who developed PN from giardia. He thought it would be very worth while to take Flagyl for 10 days to see if it would cure me. I am terrified of this drug however due to the fact that it actually induces PN with in the first few days of taking it for some people.
So that's where I am.