I was diagnosed with MG 3 years ago. I have had worse case scenario at every turn. I am certain I have had MG since I was 14 and was constantly misdiagnosed. I am 40 now. A few weeks ago my eyes started doing this weird thing that makes me puke. I thought it was vertigo. I thought maybe I had an eye problem.
I went to my doc for zofran and he said that it was a progression of the MG. My nuero recommends ivig before the progression spreads to my other muscles and to take my thymus out. I haven't really looked into these things because my vision has been so bad and because I kept hoping for healing. I am having to face reality now. Is there anything I should know? I have maxed out my doses of imuran and Mestinon. I have six small children that need me. My youngest just turned 1.