Quote:
Originally Posted by JoannaP79
Hi all,
Thanks to LouLou's recommendation, I finally found a good neurologist in the U.K who has pushed my insurance company to cover an ivig trial. I'm just arranging the date for a 5 day admission to hospital for intensive ivig every day.
Hope so much it helps with my SFN. It is now in every part of my body including my teeth! Kind of just accepting it but hope this may help me. The problem is that I don't expect to get to the end of 5 days and say yes it worked. What do I say to the neurologist if I feel the same at the end of 5 days. I don't want to stitch myself up and instead want to keep at it for as long as possible to give it a chance.
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FYI, my ds7 recently had IVIG for a different neuro condition and while we think it has helped, he also had some symptoms become more aggravated. His neuro then gave him a 3 day, solumedrol pulse to calm that down--which helped. Good luck with you IVIG!