Quote:
Originally Posted by ElaineD
I certainly hope it helps. I've been on monthly IVIG for 2.5 years, longer actually.
I have IVIG for an Immune Deficiency, not my neuropathy.
After two years of IVIG, I became AWARE of my small fiber neuropathy, so clearly the monthly IVIG did not stop my small fiber neuropathy from developing.
However, I'm know ONE thing for sure....we are all different from normal people and we are all different from each other.
So I'm sending you WISHES and HOPES that your IVIG treatment with heavy front end loading will give you some relief.
I get some relief from the worst of my SFN with 3600 mg of gabapentin (Neurontin) but it does slow me down considerably.
Hugs, ElaineD
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The dose of IVIG for immune deficiency vs that for neuropathy are VERY different. IVIG for neuropathy is triple the dose then used for immune deficiency, so it's not surprising that your neuropathy wasn't affected by the IVIG.