Nes123,

There are quite few other parents that are active on this forum with children around your daughters age. There are also others like Blazed-kitty who have been dealing with this since her younger years, like she said. Try to find a program that is familiar with treating CRPS in children. Youth is on your daughter's side. Children have the best chance of remission. As long as she remains careful, it may remain in remission for quite some time. It might take some time for some of the other parents to share their experiences. Until then, feel free to ask many of the wonderful members here any questions you may have or for some support, resources and information.

I would strongly recommend reading through a few of the "stickies" at the top of the RSD/CRPS board to familiarize yourself with treatments, resources, success stories, lifesavers and so on, if you have not done so already. There is a wealth of information and stories that many others have been kind enough to share with the rest of us.